The Worsfold Family is hosting this event and will be there to greet you at the walk!
After our son Owen was diagnosed with Duchenne muscular dystrophy in 2013 at the age of 6, we wanted to get involved, find our community and raise some money to help those in need.
Our first Walk for Muscular Dystrophy was in 2014 shortly after our son was diagnosed. It was a very difficult time for us and being surrounded by all our family and friends as well as others affected by this disorder was so heartwarming and meant so much to us. The love and support we felt was tremendous.
The Walk gives us the chance to meet others in the Duchenne community and also to give much needed exposure to the community on muscular dystrophies, and what it means to live with the challenges we face day to day. This event is so important to the muscular dystrophy community. It’s a chance to raise awareness not only for muscular dystrophy but for all the great things that Muscular Dystrophy Canada does to help families like ours coping with this.
Our favourite way to raise awareness and fundraise is through social media, talking to friends and co-workers and through our organization called Stand for Duchenne Canada. Our mandate is to unite the Duchenne muscular dystrophy community across Canada, advocating for access to the best care and treatment for our boys living with Duchenne. It has also been a great way to create awareness about important events and fundraising initiatives throughout the Duchenne community.
The Walk is a great way to meet passionate people who are united for a common cause. Muscular dystrophy is a rare disorder and together we can create awareness and raise funds to help our community. Come to the Walk and meet others dealing with the same challenges as you and have some fun.
We are walking for our son Owen and all those families touched by Duchenne muscular dystrophy.
-The Worsfold Family