We have named our team, Team Jacob in support of our son Jacob. Jacob is a sweet 4, almost 5 year old who was incidentally diagnosed with Duchenne Muscular Dystrophy (DMD) at the age of 6 months old through blood work.
There have been a lot of emotional ups and downs for our family since diagnosis. It has been difficult knowing that DMD is one hundred percent fatal and will rob our son of his ability to use his body. Seeing Jacob fall frequently and hurt himself is hard for us as parents and it is challenging for Jacob as he becomes very frustrated because he can't keep up with his friends.
A very wise person once told us that "there is always a lot of good that comes from a devastating situation". For us this has been all the love and support we have received from our village of family and friends. Also, it has taught us to slow down and really enjoy every day of our lives together as a family.
We first heard of the Walk for MD four years ago through the MD Canada website. We decided to become involved with the walk to gain support for others in a similar situation as our family.
It is important for people to participate in the walk to not only help raise awareness about rare neuromuscular diseases like DMD but to find support from others with a similar disease. With out the support of others it is very easy to feel alone. The walk really lifts your spirits and lets you know others are here for you and walking a similar path.
Because our family is fortunate enough to have so much support we are able to fund raise in many different cities from North Bay to Sault Ste. Marie to Toronto and even as far away as Alberta. Here in North Bay, a lot of our sponsors are through our jobs...North Bay Regional Health Center, The Catholic School Board and Shane White Construction. We often raffle off big items like our booze in a basket, family photo sessions, and Jacob and Averi (Jacob's sister), sell ice cream. We are very thankful to our donors who donate items to raffle off.
Our favorite part of the walk is getting together with others faced with similar challenges as us and having the opportunity to talk with them. The support is truly amazing!
Tips for first time walkers would be get ready to meet some amazing people and to have lots of fun!|